Advocate For Justin

The school plight continues for Justin. It is absolutely ridiculous to me that I have been waiting to set up an appointment since November (2015) to re-schedule Justin's annual meeting to schedule his next year.

It gets so frustrating as a parent ! You know, it's hard enough having a special needs child. Than add in everything else (called life,) and it's so easy to just want to give up.

I had, had enough and Justin now has an advocate to assist in anything I need them to. His advocate will be attending the next meeting, whenever that is.

The worst feeling is feeling like your hands are tied, and that's exactly how I feel these days.

It angers me that if I had the money I could just hire therapists to come whenever I want. I don't think a child's progress with such therapies as speech and occupational should be dependant upon how much money you have or don't have.

Justin is making such huge strides, I'm so proud of him !

He is starting to talk, and put sentences together. Hence the urgency to get him more therapies, especially speech.

I would love to hear your struggles and frustrations !
#JustinsAutism

Brother Tickle Time

#JustinsAutism

Justin Did Not Start School

Justin did not start school last Tuesday. After thinking about it, and discussing it with my family. None of us where comfortable with having him go for full day school.

Really, I was caught off guard at the meeting where we discussed it.

You know, I have been jumping through the schools hoops for 4 months now.

I felt blindsided at that meeting. I thought we were all on the same page, and than suddenly I'm feeling like I'm having to defend why I'm not comfortable with throwing Justin into full time schooling. I just wasn't prepared for it.

The other thing that I wasn't prepared for was Justin's behavior, see he was at that meeting. He heard everything we were talking about. After we got home he started acting out and misbehaving.

Doing things he had never done before like hitting his siblings, doing things intentionally wrong, he was angry and would make an angry growling noise, and he would burst out in tears.

As a mother, I could not ignore those signs. After we talked with him about it, we told him if he didn't want to go he didn't have to, he said "Good." Later that day his older brother asked him," Justin, do you want to go to school" to which he replied "No."

Because nothing can just be a simple adjustment, now we must set another meeting.
Oh the endless meetings.
#JustinsAutism